Sickle Cell Society UK

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Campaign Update: 📣 , Janet Daby MP took a stand, urging the Government to prioritise swift pain relief for sickle cell patients at A&E.

The Minister for Health and Secondary Care has agreed to a meeting with Janet and the Sickle Cell Society to explore ways to enhance patient experiences and ensure timely access to medications. We eagerly anticipate this opportunity.

In Janet’s own words, “…. it has been more than two years since the “No One’s Listening” report, which made the key recommendation that sickle cell patients receive pain relief within 30 minutes of attending accident and emergency. Why is that still not happening for sickle cell patients, and would the Minister like to meet me and the Sickle Cell Society to discuss how to achieve that?”

🤝#PatientAdvocacy#PatientExperience#SickleCellAwareness#HealthcareImprovement

Contains Parliamentary information licensed under the Open Parliament Licence v3.0

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What is sickle cell?

Awareness Community

“Sickle cell disease is the name for a group of inherited health conditions that affect the red blood cells. The most serious type is called sickle cell anaemia.

Sickle cell disease is particularly common in people with an African or Caribbean family background.

If you are in London, please go to https://www.sicklefes.co.uk/ for Sickle Cell Fun Education and Support

People with sickle cell disease produce unusually shaped red blood cells that can cause problems because they do not live as long as healthy blood cells and can block blood vessels.” source: https://www.nhsinform.scot/

“Sickle cell disease is a serious and lifelong health condition, although treatment can help manage many of the symptoms.

Sickle cell disease affects how your body produces red blood cells. Normal red blood cells are round – red blood cells affected by sickle cell disease harden and become sickle-shaped, like a crescent moon. This causes them to die too quickly and block blood vessels, leading to symptoms that are often painful.”

source: https://www.nhs.uk/conditions/sickle-cell-disease/

Please be aware that just like every other illness, sickle cell affects people differently; some people with sickle cell may feel more pain than others.

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