What is sickle cell?

Sickle cell disease is the name for a group of inherited health conditions that affect the red blood cells. The most serious type is called sickle cell anaemia.

Sickle cell disease is particularly common in people with an African or Caribbean family background.

https://www.facebook.com/groups/sicklecellworld

People with sickle cell disease produce unusually shaped red blood cells that can cause problems because they do not live as long as healthy blood cells and can block blood vessels.” source: https://www.nhsinform.scot/

“Sickle cell disease is a serious and lifelong health condition, although treatment can help manage many of the symptoms.

Sickle cell disease affects how your body produces red blood cells. Normal red blood cells are round – red blood cells affected by sickle cell disease harden and become sickle-shaped, like a crescent moon. This causes them to die too quickly and block blood vessels, leading to symptoms that are often painful.”

source: https://www.nhs.uk/conditions/sickle-cell-disease/

Please be aware that just like every other illness, sickle cell affects people differently; some people with sickle cell may feel more pain than others.

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Sickle Cell Society UK

Doing fantastic work on Sicklecell awareness:

Please visit on Facebook to see the amazing work


Campaign Update: 📣 , Janet Daby MP took a stand, urging the Government to prioritise swift pain relief for sickle cell patients at A&E.

The Minister for Health and Secondary Care has agreed to a meeting with Janet and the Sickle Cell Society to explore ways to enhance patient experiences and ensure timely access to medications. We eagerly anticipate this opportunity.

In Janet’s own words, “…. it has been more than two years since the “No One’s Listening” report, which made the key recommendation that sickle cell patients receive pain relief within 30 minutes of attending accident and emergency. Why is that still not happening for sickle cell patients, and would the Minister like to meet me and the Sickle Cell Society to discuss how to achieve that?”

🤝#PatientAdvocacy#PatientExperience#SickleCellAwareness#HealthcareImprovement

Contains Parliamentary information licensed under the Open Parliament Licence v3.0

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Georgia Ijeoma Ugwu

Winds of Harmattan – extract

Georgia Ijeoma Ugwu lives in London and works as an IT consultant. She has a BSc in Economics and MSc in Business Information Technology. She is currently studying Data Mining and Data Warehousing. Her major distraction is writing; it keeps her sane and insane. She is taking a course in Creative Writing at Birkbeck, University of London, which is definitely helping to refine her stories, one of which has recently been selected for honourable mention in the African Diaspora Short Story Competition.

This was from ages ago. Please visit the Birkbeck writloud page to see works by others!

https://www.bbk.ac.uk/writloud/Writers

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Ground Rules for a family WhatsApp group please moderate to your liking:

  1. Respect no matter the age. Please try not to ask people direct questions and remember that they don’t have to answer if they don’t feel comfortable
  2. Not a place to settle individual scores. DM the people you hate and let them know. We don’t hate who you hate
  3. If you have nothing nice to say it is best to keep your opinion to yourself
  4. Don’t continue to post irrelevant videos or reduce the numbers to not more than 3 in a week as not everyone enjoys what you enjoy
  5. We must not talk about each other’s husbands or wives or girlfriends or boyfriends
  6. We don’t care if people are gay. Don’t tell us or ask our opinion except it is celebrities
  7. Don’t ask people what they are doing for work. Or if they have built a house. If they want you to know they will tell you
  8. If you have an event or business, please share your joy or idea
  9. Do not solicit for funds
  10. Do not advise people to contribute money to something or someone you care about
  11. Do not ask others to hate who you hate or like who you like
  12. A good place to share photos and events
  13. Post your own personal videos not politicians etc
  14. It is good to debate about public figures but not individuals that we are friends with
  15. Mind your business. You are not the moral lord of anyone
  16. Moderate Your Own Behaviour e.g don’t voice your anger because it can give others headache
  17. Check the Facts don’t forward things you are not sure about
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